What to Expect

Learn more about what to do before your appointment.  

Your child has been referred to the Cystic Fibrosis Program because they have been diagnosed with cystic fibrosis (CF). In our program, we monitor your child’s symptoms, recommend the latest treatments and provide education so your child can grow up as healthy and active as possible.

Seattle Children’s is a teaching hospital. Your child will receive care from a team that may include:

• Attending doctors
• Fellows
• Residents
• Registered nurses
• Athletic trainers
• Child Life specialists
• Dietitians
• Respiratory therapists
• Social workers

A CF clinic visit usually takes between 1 and 3 hours. While this seems like a long visit, it gives your family a chance to meet with many of our CF team members.

If your child is new to Seattle Children’s, please bring (if appropriate):

• Clinic notes or reports.
• Test results, including blood work, sweat test results and/or genetic testing results.
• Your child’s medicines or a list of medicines. Include non-prescription items like vitamins. Include name, dose and instructions.
• Your child’s medical equipment.
• Any forms that might need to be signed by our providers, like school forms.
• Actual X-rays or X-rays on a CD.

If your child is older than 1, we recommend that you schedule 1 clinic visit every 3 months. If your child is younger than 1, we recommend they are seen in our clinic every 1 to 2 months.

Call our scheduling team at 206-987-2024, option 1.

• Find your location in our map and directions section.
• Arrive 15 minutes before your appointment to allow time for registration.