Patient and Family Education
We want you to have all the information you and your family need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.
Resources at Seattle Children’s
- What to expect at the Fetal Diagnosis Program
- What to expect at the Maternal Fetal Intervention and Surgery Program (PDF) (Arabic) (Simplified Chinese) (Somali) (Spanish) (Vietnamese)
- How to prepare for a visit to Seattle Children’s Fetal Care and Treatment Center (PDF) (Spanish)
- Transportation and places to stay
- Hospital services
- Paying for care
- Social Work
Condition-Specific Resources
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Congenital diaphragmatic hernia (CDH)
- Congenital Diaphragmatic Hernia (CDH) (PDF)
- Congenital Diaphragmatic Hernia (American Pediatric Surgery Association)
Contact our Fetal Care and Treatment Center to learn more about CDH.
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Congenital heart disease
- Heart Diagram (PDF)
- Special Care for Your Baby with Congenital Heart Disease (PDF)
- Congenital Heart Family Events
- Web Resources for Families of Children With a Heart Condition (PDF)
See more Heart Center resources for patients and families. Contact our Fetal Care and Treatment Center to learn more about heart conditions.
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Craniofacial conditions
See Craniofacial Center resources for patients and families. Contact our Fetal Care and Treatment Center to learn more about craniofacial conditions.
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Disorders of the corpus callosum
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Down syndrome
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Gastroschisis
- Gastroschisis and My Baby (PDF)
- Gastroschisis (American Pediatric Surgery Association)
Contact our Fetal Care and Treatment Center to learn more about gastroschisis.
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Hydrocephalus
Contact our Fetal Care and Treatment Center to learn more about hydrocephalus.
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Omphalocele
- Omphalocele (American Pediatric Surgery Association)
Contact our Fetal Care and Treatment Center to learn more about omphalocele.
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Spina bifida
- Spina Bifida (PDF) (Amharic) (Spanish)
- Spina Bifida Association
- Spina Bifida Advocates of Washington State
Contact our Fetal Care and Treatment Center to learn more about spina bifida, including myelomeningocele.
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Urologic conditions
See more urology resources for patients and families. Contact our Fetal Care and Treatment Center to learn more about urologic conditions.
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Selective intrauterine growth restriction (SIUGR)
Contact our Fetal Care and Treatment Center to learn more about SIUGR.
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Twin reversed arterial perfusion (TRAP)
Contact our Fetal Care and Treatment Center to learn more about TRAP.
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Twin-to-twin transfusion syndrome (TTTS)
Contact our Fetal Care and Treatment Center to learn more about TTTS.
Treatment-Specific Resources
- Common Questions After Your Prenatal Visit (PDF) (Spanish)
- Echocardiogram
- How to Handle a Difficult Prenatal Diagnosis
- Medical Genetics (PDF) (Spanish)
- Prenatal Genetic Testing (Washington State Department of Health)
- Providing Breastmilk: Your Gift to Your Baby (PDF) (Spanish)
- SNP Array: Pre-Test Counseling Information (PDF) (Spanish)
- Ultrasound: Obstetrical Exam (PDF) (Korean, Russian, Spanish, Vietnamese)
- Variant of Uncertain Significance (VUS) (PDF) (Spanish)
Learn more about your baby’s trip to Seattle Children’s if they need Critical Care Transport (Video. 5:10)
General Prenatal Diagnosis and Treatment Resources
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Support and classes
- Babysafe Class
- Heartsaver First Aid CPR AED Class
- Parent Support Program
- Sibshops
- Unique Rare Chromosome Support Group
- List of support groups at Seattle Children’s
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External links
- Fetal Health Foundation
Information and resources for families who have received a fetal diagnosis. - Maternal & Infant Care Clinic at UW Medical Center – Montlake
Services for expecting parents with complicated pregnancies and contact information for the clinic.
- Fetal Health Foundation
Contact Us
Contact the Fetal Care and Treatment Center at 206-987-5629 for an appointment, second opinion or more information.
Providers, see how to refer a patient.
Access Additional Resources
Get resources for patients and families, including information on food, housing, transportation, financial assistance, mental health and more.