Patient and Family Education
Resources for You and Your Family
We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.
Resources at Seattle Children’s
Condition-Specific Resources
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Abdominal Pain
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Celiac disease
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Constipation
- Constipation: Treatment of Chronic Constipation and Soiling (Encopresis) (PDF) (Spanish)
- Constipation: Frequently Asked Questions (PDF) (Spanish)
- Constipation Treatment Recommendations (PDF) (Spanish)
- Mild Constipation: Polyethylene Glycol (Miralax) Dosage Table (PDF) (Spanish)
- Severe or Chronic Constipation: Polyethylene Glycol (Miralax) Dosage Table (PDF) (Spanish)
- Pelvic Floor Dysfunction (PDF)
- Polyethylene Glycol 3350 (PEG 3350) Frequently Asked Questions (PDF) (NASPGHAN)
- Bowel Cleanout and Maintenance Program at a Glance (PDF)
- Fiber: The Body’s Scrub Brush (PDF) (Washington State Dairy Council)
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Diarrhea
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Fatty liver disease (NASH – nonalcoholic steatohepatitis)
- Feeding Your Family (PDF)
- Healthy Lifestyle: Saving Dollars on Food (PDF) (Spanish)
- Screen Time (PDF) (Spanish)
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Food intolerances
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Gallstones
Ursodiol (Urso, Actigall), a medicine to treat gallstones (PDF) (Spanish)
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Hepatitis
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IBD, Crohn’s and ulcerative colitis
- Camp Oasis (video, 0:54)
- Crohn's and Colitis Foundation: Inflammatory Bowel Disease Patient Conference Part 1 (video)
- Crohn's and Colitis Foundation: Inflammatory Bowel Disease Patient Conference Part 2 (video)
- Crohn's and Colitis Foundation of America
- Crohn's Disease – Treating Your Child in the Hospital (PDF) (Spanish)
- Exclusive Enteral Nutrition and the Specific Carbohydrate Diet (SCD) (video)
- Fecal Microbial Transformation: Diet as Therapy in IBD (video)
- ImproveCareNow
- Inflammatory Bowel Disease
- Inflammatory Bowel Disease Center Clinic Visit Roadmap (PDF) (Spanish)
- Infliximab Infusions and Billing (PDF) (Spanish)
- SCDelicious Videos: Learn Selective Carbohydrate Diet Recipes
- SCDelicious: Maddie's Banana Cake (video)
- SCDelicious: Avi's Cheesy Crackers and Dip (video)
- Specific Carbohydrate Diet Pocket Card (PDF)
- Ulcerative Colitis – Treating Your Child in the Hospital (PDF) (Spanish)
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Lactose intolerance
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Liver diseases
- Alagille syndrome
- American Liver Foundation
- Biliary atresia
- Childhood Liver Disease Research and Education Network
- Children's Liver Association for Support Services
- Liver biopsy
- Liver Transplant Evaluation Checklist (PDF) (Spanish)
- Nonalcoholic Steatohepatitis Clinical Research Network
- Pediatric Acute Liver Failure Study
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Motility disorders
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Pain
- Functional Abdominal Pain (PDF) (Spanish)
- Parents, Speak Up About Pain (video)
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Pancreatitis
- Pancreatitis Acute Pain (PDF) (Spanish)
- Pancreatic Disease Monitoring (PDF) (Spanish)
- Pancreatitis Nutrition Plan (PDF) (Spanish)
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Peptic ulcers
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Physiological Gastroesophageal Reflux
Procedure-Specific Resources
- Anorectal Manometry (ARM): Bowel Cleanout and Eating Instructions for Your Child (PDF) (Spanish)
- Bowel Cleanout for Colonoscopy (MiraLAX [Polyethylene Glycol] – 238-Gram bottle) (PDF)
- Endoscopy: Preparing Your Child (PDF) (Amharic) (Dari) (Somali) (Spanish) (Vietnamese)
- Endoscopy and Colonoscopy: Preparing Your Child (PDF) (Spanish)
- ERCP: Preparing Your Child (PDF) (Spanish)
- Percutaneous (Through the Skin) Liver Biopsy (PDF) (Spanish)
- What is a poop transplant, and how does it work? (video)
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Manometry procedures
- Anorectal Manometry (PDF) (Spanish)
- Antroduodenal Manometry (PDF)
- Colonic Manometry (PDF) (Spanish)
- Esophageal Manometry (PDF)
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Tube feeding
- Gastrojejunostomy (GJ) Tube Feeding Instructions (PDF) (Spanish)
- Gastrostomy Feeding and Tube Care (PDF) (Spanish)
- Low Profile Gastrostomy Tube (GT) Feeding Instructions (PDF) (Spanish)
- Nasogastric (NG) Tube Feeding Instructions (PDF) (Arabic) (Dari) (French) (Russian) (Spanish) (Vietnamese)
- PEG Gastrostomy Tube Feeding Instructions(PDF) (Spanish)
- Giving Medicine Through a Nasogastric (NG) Feeding Tube (PDF) (Portuguese) (Russian) (Spanish)
- Inside Out Care handout for families (PDF)
For teens
Useful Links
- Children's Digestive Health and Nutrition Foundation
- Disposal of Sharps (PDF) (Spanish)
- Pancreatic Disease Monitoring (PDF) (Spanish)
- National Digestive Diseases Information Clearinghouse
- North American Society for Pediatric Gastroenterology, Hepatology and Nutrition: Family Resources
- Pelvic Floor Therapists
- Kids Meet a Poop Doctor (video, 4:26)