Patient and Family Education
We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.
Resources at Seattle Children’s
Condition-Specific Resources
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Kidneys and kidney disease in general
- Your Kidneys and How They Work (NIDDK) (Spanish)
- Acute Kidney Injury (PDF) (Spanish)
- Kidney Disease (NIDDK) (Spanish)
- Kidney Diseases in Childhood (KidsHealth)
- Kidney School (English and Spanish)
- National Kidney Foundation
- National Kidney Foundation: A to Z Health Guide
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Chronic kidney disease
- Alport Syndrome Fast Facts (Alport Syndrome Foundation)
- When Your Child Has a Chronic Kidney Disease (Kids Health)
- Chronic Kidney Disease: A Family Affair (National Institute of Diabetes and Digestive and Kidney Diseases) (Spanish)
- Managing Chronic Kidney Disease (NIDDK)
- FSGS (Focal Segmental Glomerulosclerosis) (The NephCure Foundation)
- Glomerular Disease (NIDDK)
- Membranoproliferative Glomerulonephritis (MPGN) (National Kidney Foundation)
- MPGN (UK National Kidney Federation)
- Polycystic Kidney Disease (PKD) Foundation
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Kidney failure
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Hemolytic uremic syndrome (HUS)
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Henoch-Schönlein Purpura (HSP)
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High blood pressure (hypertension)
- 24-Hour Ambulatory Blood Pressure Monitoring: Patient Instructions and Device Loan Agreement (PDF) (Simplified Chinese) (Spanish) (Vietnamese)
- 24-hour Ambulatory Blood Pressure Monitor (ABPM) Record Keeping Diary (PDF) (Spanish)
- Daily Blood Pressure Readings (PDF) (Russian) (Spanish) (Vietnamese)
- Instructions for Taking Blood Pressures at Home (PDF) (Russian) (Spanish) (Vietnamese)
- Seattle Children’s Hypertension Clinic (PDF)
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IgA nephropathy
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Kidney stones
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Nephrotic syndrome
- After Age 2 Children with Nephrotic Syndrome Need to be Protected with Pneumovax Vaccine (PDF)
- Flu Vaccine and Nephrotic Syndrome (PDF)
- Nephrotic Syndrome (PDF) (Spanish)
- General Information on Nephrotic Syndrome (English and Spanish) (DOC) (KidneyWeb)
- The NephCure Foundation: Nephrotic Syndrome and FSGS
- Nephrotic Syndrome (NIDDK)
Resources about Tests and Treatments
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Treatments
- Acute Pain (PDF) (Amharic) (Arabic) (Chinese) (Dari) (Japanese) (Oromo) (Russian) (Somali) (Spanish) (Vietnamese)
- Daily Blood Pressure Reading Log (PDF) (Russian) (Spanish) (Vietnamese)
- Daily Urine Check Sheet (PDF) (Spanish)
- Dialysis Resources
- Disposal of Sharps (PDF) (Marshallese) (Spanish)
- Giving Your Child Shots (subcutaneous injections) (PDF) (Spanish)
- Prednisone (PDF) (Spanish)
- Kidney Transplant Resources
- What to Expect If Your Child Needs a Kidney Transplant
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Diets for kidney health
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Tests and procedures
- 24-Hour Urine Collection (PDF) (Spanish)
- Kidney Biopsy and Your Child (PDF) (Spanish)
- How to Collect a First Morning Urine Sample (PDF) (Spanish)
- How to Use Urine Dipsticks (English and Spanish) (DOC) (KidneyWeb.net)
- Lasix Renal Scan (PDF) (Amharic) (Korean) (Russian) (Spanish)
- Nuclear Voiding Cystogram (PDF)
- Preparing for Your Apheresis Procedure: Plasma Exchange (PDF) (Spanish)
- Ultrasound (PDF)
- Urodynamics Study (UDS): Preparing Your Child for a Bladder Test (PDF) (Dari) (Russian) (Spanish)
- Uroflow Tests (PDF) (Spanish)
Contact Us
For more information, contact Nephrology at 206-987-2524. If you would like an appointment, ask your child’s primary care provider for a referral.
Providers, see how to refer a patient.