Patient and Family Education
We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.
Resources at Seattle Children’s
- What to expect at the Neurodevelopmental Program
- How to prepare for your visit
- Transportation and places to stay
- Hospital services
- Paying for care
- Social work
Condition-Specific Resources
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Autism
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Bladder exstrophy
- Bladder Exstrophy (PDF) (Dari) (Spanish)
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Cerebral Palsy
- Contact our Neurosciences Center to have your child evaluated for cerebral palsy and spasticity.
- Contact our Rehabilitation Medicine Program to learn how we treat children and adolescents with cerebral palsy and spasticity.
- See Cerebral Palsy Patient and Family Resources from Seattle Children’s.
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Chiari malformation
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Constipation and soiling
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Daytime wetting
- Daytime Wetting (PDF) (Spanish)
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Delayed speech or language development
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Hydrocephalus
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Latex allergy
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Neurogenic bowel
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Plagiocephaly (flat head syndrome) (video)
- Plagiocephaly (Flat Head Syndrome) (Video 5:09). Matt Speltz from Seattle Children’s discusses the possible association between plagiocephaly and developmental delay.
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Spina bifida
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Tethered spinal cord
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Tourette syndrome
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Urinary reflux
- Urinary Reflux (PDF) (Dari) (Spanish)
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Urinary tract infections
Treatment-Specific Resources
- ACE Irrigation (PDF)
- Clean Intermittent Catheterization (PDF) (Dari) (Russian) (Spanish)
- Mitrofanoff Channel (PDF) (Dari) (Spanish)
- Videofluoroscopic Swallowing Study (VFSS) (PDF) (Russian) (Spanish)
- Voiding Cysto Urethrogram (VCUG) (PDF) (Russian) (Spanish)
- CT Scan (PDF) (Spanish)
- Magnetic Resonance Imaging (MRI) (PDF) (Spanish) (Russian)
- Ultrasound (PDF) (Spanish)
- X-ray (PDF) (Spanish)
Specifically for Teens and Young Adults
Classes and Support
Other Neurodevelopmental Resources
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ADHD/ADD
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Advocacy
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Assistive technology
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Birth control
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Down syndrome
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Driving/traveling
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Early intervention
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Emergency preparedness
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Fraudulent medical information
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Incontinence/potty training
- Bedwetting Store
- General Pediatric Incontinence (Urology Care Foundation)
- Potty MD
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Learning disabilities/developmental disabilities
- American Association on Intellectual and Developmental Disabilities (AAIDD)
- Birth to Three Centers: King and Pierce County Community Resources
- CanChild Centre for Childhood Disability Research (McMaster University)
- Center on Human Development and Disability, University of Washington
- Developmental Disabilities Administration (Washington State Department of Social and Health Services)
- Disability Resources (U.S. Department of Labor)
- Disabilities, Opportunities, Internetworking, and Technology (DO-IT), University of Washington
- Intellectual Disability Fact Sheet (CDC) (PDF)
- National Center for Learning Disabilities
- Washington State Developmental Disabilities Council
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Mental health
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Recreation/sports
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Rehabilitation medicine
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Schools/homeschooling
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Sleep
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Social Security information
Support the Neurodevelopmental Program
If you are interested in supporting the Neurodevelopmental Program, please contact Julia Mitzel.
Disabilities and Special Healthcare Needs (Publications From Washington State Department of Health)
For additional resources, visit Disabilities and Special Healthcare Needs Publications for links to online publications on a variety of health topics.